Cure CAGS: Hope for a Better Future

About the Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.

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The Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc. is dedicated to finding treatments and a cure for Chopra-Amiel-Gordon Syndrome while fostering a global CAGS community. We aim to connect families, researchers, and healthcare professionals to advance understanding and treatment of Chopra-Amiel-Gordon Syndrome worldwide.

CAGS Support Services

CAGS Clinic at Boston Children's Hospital

Dr. Maya Chopra at Boston Children's Hospital is actively conducting a natural history study aimed at better understanding CAGS and improving outcomes. Families can make an appointment to see Dr. Chopra at the CAGS Clinic at Boston Children's. Learn more on the CAGS clinic tab.

Join the Natural History Study

Participation in the natural history study led by Dr. Maya Chopra helps researchers better understand the progression of CAGS and facilitates the development of effective treatments and therapies. Your involvement is crucial for advancing research. How to join the study

Join Our Community

Connect with other families, caregivers, and individuals affected by CAGS by joining our supportive and informative CAGS Facebook Group. Share experiences, ask questions, and build lasting connections.

Support Research & Foundation Operations

Your contributions make a direct impact by funding critical research initiatives aimed at better understanding, treating, and ultimately curing CAGS and by supporting the essential operating infrastructure that allows the CAGS Foundation to carry out this mission.

Every dollar helps accelerate scientific progress while sustaining the day-to-day work needed to support families, raise awareness, and strengthen research partnerships.

Together, we can make a difference.

Research Initiatives

We are currently recruiting for the Chopra-Amiel-Gordon Syndrome (CAGS) natural history study of individuals with ANKRD17 variants known or suspected to cause CAGS.

Global Network

Join our global network to connect with others and share experiences related to CAGS and its challenges.

Get in Touch

Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
1742 S Woodland Blvd. #409
DeLand, FL 32720

Email: info@curecags.org
Registered Agent: registeredagent-dbh@shuffieldlowman.com

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