Cure CAGS: Hope for a Better Future

Join us in finding treatments for ANKRD17 Chopra-Amiel-Gordon Syndrome (CAGS) and building a global network.

Join the study

What is CAGS?

About the Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.

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Countries Represented

The Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc. is dedicated to finding treatments and a cure for Chopra-Amiel-Gordon Syndrome while fostering a global CAGS community. We aim to connect families, researchers, and healthcare professionals to advance understanding and treatment of Chopra-Amiel-Gordon Syndrome worldwide.

CAGS Support Services

We are committed to providing resources and support for individuals and families impacted by CAGS.

CAGS Center at Boston Children's Hospital

Dr. Maya Chopra at Boston Children's Hospital is actively conducting a natural history study aimed at better understanding CAGS and improving outcomes. Families can make an appointment to see Dr. Chopra at the CAGS Center at Boston Children's. Families interested in participating in the study or seeking to schedule a physician appointment can directly contact Dr. Chopra via email at maya.chopra@childrens.harvard.edu.

Join the Natural History Study

Participation in the natural history study led by Dr. Maya Chopra helps researchers better understand the progression of CAGS and facilitates the development of effective treatments and therapies. Your involvement is crucial for advancing research.

Join Our Community

Connect with other families, caregivers, and individuals affected by CAGS by joining our supportive and informative CAGS Facebook Group. Share experiences, ask questions, and build lasting connections.

Support Research

Your contributions and support directly fund research initiatives aimed at finding better treatments and ultimately a cure for CAGS. Every effort counts toward improving the lives of those affected.

Together, we can make a difference.

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Research Initiatives

We are currently recruiting for the Chopra-Amiel-Gordon Syndrome (CAGS) natural history study of individuals with ANKRD17 variants known or suspected to cause CAGS.

Global Network

Join our global network to connect with others and share experiences related to CAGS and its challenges.

Get in Touch

Submit your name and email to receive periodic CAGS updates.

Want to do more?

Provide additional information to us using the CAGS Community Form.

Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
1742 S Woodland Blvd. #409
DeLand, FL 32720

Email: info@curecags.org
Registered Agent: registeredagent-dbh@shuffieldlowman.com