Cure CAGS: Hope for a Better Future
Join us in finding treatments for ANKRD17 Chopra-Amiel-Gordon Syndrome (CAGS) and building a global network.
About the Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
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The Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc. is dedicated to finding treatments and a cure for Chopra-Amiel-Gordon Syndrome while fostering a global CAGS community. We aim to connect families, researchers, and healthcare professionals to advance understanding and treatment of Chopra-Amiel-Gordon Syndrome worldwide.
CAGS Support Services
CAGS Clinic at Boston Children's Hospital
Dr. Maya Chopra at Boston Children's Hospital is actively conducting a natural history study aimed at better understanding CAGS and improving outcomes. Families can make an appointment to see Dr. Chopra at the CAGS Clinic at Boston Children's. Learn more on the CAGS clinic website.
Join the Natural History Study
Participation in the natural history study led by Dr. Maya Chopra helps researchers better understand the progression of CAGS and facilitates the development of effective treatments and therapies. Your involvement is crucial for advancing research.
Join Our Community
Connect with other families, caregivers, and individuals affected by CAGS by joining our supportive and informative CAGS Facebook Group. Share experiences, ask questions, and build lasting connections.
Support Research
Your contributions and support directly fund research initiatives aimed at finding better treatments and ultimately a cure for CAGS. Every effort counts toward improving the lives of those affected.
Together, we can make a difference.
We are currently recruiting for the Chopra-Amiel-Gordon Syndrome (CAGS) natural history study of individuals with ANKRD17 variants known or suspected to cause CAGS.
Join our global network to connect with others and share experiences related to CAGS and its challenges.
Get in Touch
Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
1742 S Woodland Blvd. #409
DeLand, FL 32720
Email: info@curecags.org
Registered Agent: registeredagent-dbh@shuffieldlowman.com
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Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
Chopra-Amiel-Gordon Syndrome (CAGS) Foundation is a 501(c)3 tax-exempt organization.
EIN # 33-2923434. Donations are tax-deductible.
*We are currently registered to solicit charitable contributions in Florida, Ohio, New York, Maryland, Massachusetts, New Jersey, and North Carolina. Residents of states that do not require charitable registration or where we are already registered may donate freely. If you reside in a state where registration is required and we are not yet registered, you may still make an unsolicited donation on your own initiative. We are in the process of registering in additional states and appreciate your support.
© 2025. All rights reserved.
Email: info@curecags.org
Registered Agent: registeredagent-dbh@shuffieldlowman.com