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About the CAGS Foundation
Cure CAGS is dedicated to finding treatments and a cure for ANKRD17 Chopra-Amiel-Gordon Syndrome while fostering a global CAGS community.
Our Mission
We aim to connect families, researchers, and healthcare professionals to advance understanding and treatment of Chopra-Amiel-Gordon Syndrome worldwide.
Learn more about CAGS
The Partnership Between Rare Disease Families and Researchers: Jennifer Wells and Dr. Maya Chopra
Our Location
The Chopra-Amiel-Gordon Foundation, located in DeLand, Florida, is dedicated to supporting research and building a global network for families to share and connect. With valuable research collaboration from Boston Children's Hospital, the foundation is committed to fostering a global community of families who share similar experiences and challenges. Families from around the world are welcomed into this nurturing environment, where shared stories and collective strength foster hope and resilience. Through these efforts, the foundation continues to make a meaningful impact in the lives of individuals and families seeking guidance and support on their journeys.
Contact
DeLand, Florida 32724
Having a son with CAGS has taught me the true meaning of strength, resilience, and unconditional love. Every challenge comes with its own victories, and through his journey, we’ve discovered the beauty in embracing uniqueness and celebrating every milestone, big or small.
-Maribeth
Thanks to the CAGS Research team and Dr. Chopra, we feel supported and hopeful in our journey towards a cure.
-Jenn